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27.08.2008 Wandafonds Dutch Association and
its Polish sister Wanda Foundation - actualities. ...[more]
Read further:
Botulinum toxin treatment of
upper and lower extremity in cerebral palsy children .
Poznan June 2007
The course in Zagorze given by the Medical Team in Poland in
March .
Wandafonds concludes successfully first training round 2007.
Parents help parents
Cooperation between medical professionals and patients
Congress in Warsaw (East European and Mediterranean Meeting on
Cerebral Palsy and Developmental Medicine) June 2006
Visit to Rzeszow June 2006
How do you make a splint?
Visit medical team overwhelming success
Cold-but warmly received
Botulinum toxin treatment of upper and lower extremity in
cerebral palsy children Poznan June 2007
On June 18 and 19 the Medical Team offered workshops on the
treatment of Cerebral Palsy children for the second time this
year.
These workshops are a sequel to the course given by the Medical
Team in Poland in March.
The concept of “demonstrative instruction” combined with
“learning by doing” turns out to be successful. Our Polish
colleagues are amazed at what they can learn in just one day.
Marcin and Jules Becher are seeing eye to eye. Marcin is one of
the polish children who is receiving treatment fitting with his
needs, as a result of the Wanda Fund.
In Holland we know child-centred treatment; this approach has
proved to be an eye-opener for our Polish colleagues.
Simon gets botulin injections in his hand. This is a new item of
the Wanda Fund training scheme. Prof. Dr. Jules Becher, head of
the Medical Team, is showing Polish colleagues how to do this.
Botulin relaxes the muscles. This enables some patients to move
better, but it doesn’t work for all spastics, unfortunately. If
botulin is applied wrongly, it may even have disastrous
effects.
That is the reason why the workshop attendants are taught how to
recognize various types of spasticity.
Botulin injections are only given to anaesthetised patients,
because jabs into the muscles are very painful.
Wandafonds concludes successfully first training round 2007:
Monday 15 January, 11 Polish specialists in the field of (child)
rehabilitation, orthopaedics, physiotherapy and occupational
therapy from Poznan and Rzeszow started their training period in
new techniques and treatment methods for spastic children. The
specialists had their training period at the VUMC Amsterdam and
Rehabilitation Centre de Trappenberg in Huizen. Orthopaedic
instrument makers received training at Noppe orthopaedics at
Noordwijkerhout. During an intensive training period of two
weeks, the trainees learned a lot. Dutch colleagues accompanied
them. Afterwards the medical committee received a thank you
letter.
The next quotation follows:
“Professionally it had offered them a lot. However, the fact
that everyone at the VUMC, the Trappenberg and Noppe
orthopaedics is prepared to share their knowledge with them was
a revelation. Especially, this concerns the physicians, is the
openness in which complex cases are discussed. They are jealous
of the time our Dutch colleagues can spend on every patient and
of the conversations with the parents. These new insights and
the promise of some trainees that they will ensure that what
they have learned will be passed on to their colleagues in
Poland is a step forward in the treatment of Polish spastic
children.”
Especially that last part is exact aim of the Wandafonds. From
that, we can conclude that this has been a successful project,
of which the fruits will be reaped in the future.
Parents help parents:
In the coming years we will commit ourselves in supporting the
parents in the treatment and the association with their disabled
children. We want to help them organize a kind of parent
council. In the Netherlands, there exist many parent councils,
which perform good work. By putting the Polish parents in
contact with BOSK (a Dutch parent association), they can learn
from each other and compare notes.
Meanwhile BOSK has placed several articles concerning our
activities in their magazine. During the visit in June 2006 to
the Rehabilitation Centre Ozarowska, the members of the
Wandafonds spoke with specialists and a group of parents and
children.
Everyone has been very motivated in setting up a parent
association Dr. Barbara Sinczuk (the mother of a spastic son of
23 years of age) committed herself to accompanying parents of
spastic young adults. She suggested to us to have the parents in
the parent association and the spastic young adults cooperate.
Also with a spastic disorder, it is well possible to perform
certain activities, like e.g. activating and updating an
Internet site. The Wandafonds is a great supporter of such
cooperation.
Cooperation physicians:
In January 2007, we started with a training programme for a team
of Polish medical specialists in the Netherlands; two spastic
children with their parents were invited also. In the future by
doing it in this manner we will not only work from a medical
point of view, but also from the practical experience of the
little patients and their parents.
It is also the intention of our medical committee to give
training and workshops in Poznan and Rzeszow. The course for the
medical teams from the whole of Poland takes place from the 19th
to and including March 23, 2007. Both Dutch and Polish
participants are invited.
Congress in Warsaw (East European and Mediterranean meeting on
Cerebral Palsy and Developmental Medicine) June 2006:
The Congress participation of several members of the medical
committee resulted afterwards in many contacts with Polish
physicians, therapists and students who attended the congress.
All possibilities were more closely commented and were deepened.
Eva Kooyman (founder of the Wanda fund) took part in the session
for the parents of the spastic children. For this session, was a
lot of interest, even so much so that the room was too small to
offer all those interested a seat. Contact was made with parents
of children in the centres Warsaw and Poznan.
The members of the medical committee under the direction of Prof
J.G. Becher have, together with Eva Kooyman, on invitation of
Dr. M. Jozwiak (0rganisator of the congress and head of the
department
movement sciences) visited several
departments among which, the departments of orthopaedics and
rehabilitation of the l M. Dega hospital of the Medical Academy
in Poznan.
Visit to Rzeszow June 2006:
At the end of June, Eva, together with Wim of van der Linden
(President Wanda fund of the Netherlands) and Bert van Eekelen
(Wanda fund advisory group) visited once again Poland, this time
the visit went to the Rehabilitation Centre in Rzeszow. The
Executive Board had asked the Governing Board of the Wandafonds
and the medical committee for construction recommendations. A
meeting took place with the director of the hospital in Rzeszow,
Mr. Solarz, and the representatives of disciplines responsible
for the construction of the new centre.
The delegation of the Dutch WF also held meetings with the
physicians in Warsaw in connection with the distribution of the
financial resources, which will be made available soon by the WF
for medical resources/equipment/training periods for Polish
specialists in the Netherlands and workshops in Poland.
How do you make a splint?:
A training program for orthopaedic instrument makers. There is
an urgent need for them in Poland. Kees Noppe of “Noppe
orthopaedics” has offered to devote himself to this. The
Wandafonds provides the resources to realise this.
Last March, for the workshop in Warsaw, Zagorze, Kees gave a
foretaste in advance. He prepared a CD with all kinds of
practical skills. In the coming years, the Polish instrument
makers will come to the Netherlands to make themselves familiar
with the practical skills.
In 2007 and 2008, during training periods in the Netherlands and
courses/workshops in Poland, more orthopaedic instrument makers
will be trained. They are essential for the treatment of this
disorder.
Dr. M. Jozwiak from the Medically University Centre in Poznan is
presently busy starting the training of orthopaedic technicians,
which is approved
according to the EU rules. If you
would like to contribute to this practical training for
instrument makers; then transfer your contribution to the
following Bank account:
Rabobank: IBAN NL39 RABO 0378.1081.66. []
Visit medical team an overwhelming success:
In the beginning of March 2006, the medical committee travelled
to Poland for an extensive programme. Hour after hour was fully
planned. Jules Becher gave a lecture in Rzeszow, which, as
usual, was well attended. Afterwards he and the other members of
the medical team gave workshops in Warsaw.
Twenty physicians and forty physiotherapists submitted an
application. The Dutch specialists, together with the Polish
colleagues treated the spastic children and explained what and
why they did certain exercises.
For the lecture of Kees Noppe (who, unfortunately, could not be
present himself) twenty-one instrument makers came from all
corners of Poland to Warsaw. This was an unprecedented and
unexpected success. Jules replaced Kees in an excellent manner.
Ger Kamer, colleague of Kees, took care of the practical aspect.
Cold but warmly received:
On 5 February 2006, Eva Kooyman and Bert van Eekelen went to
Poland to prepare for the visit of the medical team, in March.
They ploughed through meters of snow to the various centres.
Everything was arranged and discussed. Bert (director of PRC
Construction Centre and as a consultant involved in Wanda
Poland) got a first impression:
“I thought I was going to a developing country, but nothing is
further from the truth. The Polish people are very busy with a
rapid catch-up. By their inquisitiveness and diligence, they
will soon be at our level and become a full European partner.
The Wandafonds provided and provides an important contribution
to this”. According to Bert van Eekelen. |
