Association of motor disabled and their parents
Information, recommendation and support by a motor handicap
In 1952, the BoSK started as Association Parents of Spastic
Children. Over the years also other handicaps got the attention
of the association, so that the name became modified in BoSK,
association of motor disabled and their parents. The
abbreviation BoSK however, as a trade name continued to exist.
Meanwhile the BoSK is more than a parent association:
young-adults with a handicap can become independent members.
Meanwhile there are also work groups for adults. The work area
of the BoSK has become broader in the previous years, but it is
still all about people who have been disabled from their
One of the main aims of the parent association is the exchange
of experiences and knowledge between parents and between parents
and care workers. Parents of a child with a handicap have one
thing in common: they have a child who is ' different '. Quite
often this creates difficulties. Then it will be a relief and
stimulating to talk with other parents of a child with a
handicap. If you replace the word ‘parents ' by ' young adults '
this objective can also be applied. Contact with companions in
distress is for all BoSK members particularly important.
Giving information concerning supplies and activities in the own
region, identifying and removal of bottle-necks and taking part
in conversations at policy level. In short: the departments
are the bases of the association.
Learning from each other
Moreover the BoSK is an important association for care workers.
Their willingness to help, their recommendation and active input
can no longer be eliminated from the BoSK. Care workers come
under the category of ' extraordinary members ' so a distinction
can be made between them and (parents of) children/adults with a
The involvement of extraordinary members is also very valuable
for the daily practice: thus care workers can become aware, that
parents of disabled children themselves are experts too. They
have a considerable amount of expert experience.
What does the BoSK do for you?
Organise informative meetings, both nationally and
regionally. The different BoSK departments try to offer
assistance close to home, including by means of individual
conversations, giving information concerning supplies and
activities in their own region, the identification and
elimination of bottle necks and taking part in conversation
at policy level. In short: the departments are the basis of
Knowledge and experience exchange by means of the BoSK
magazine, newsletters and personal contact. The BoSK
distributes brochures and information by handicap and gives
out information concerning the different aspects of a
handicap. The BoSK magazine appears a minimum of four times
per year, with captivating handicap-specific articles and
general contributes concerning appliances, compensations,
taxes, letters of members and communications concerning
activities of the BoSK and third parties. And thanks to the
support of a lot of volunteers the BoSK always offer its
members a listening ear.
It looks after the interests, both individually and
collective. Political decisions have frequently far-reaching
consequences on our members. The BoSK - particularly the
governing board and the national office - lets the voice of
its members be heard by the government, political, the board
of care institutions and scientific organisations. Therefore
the BoSK stays in contact with organisations nationally and
internationally, by which knowledge exchange is the key
To promote self-help. The B0SK organises self-help weeks for
children/young people with spina bifida and in the summer a
family holiday week. These are exclusively for B0SK -
To the areas of special attention of B0SK belong:
Spasticity (with a special work group hemiplegia)
Hydrocephalus and spina bifida (water head and open back)
Adults with spina bifida
Adults with spasticity
Schisis (lip -, jaw -, palate split)
Plural complex handicaps (combination of physical and
Tyltyl multiple handicaps (combination of physical and
Syndrome of Joubert
Stickier syndrome; contact group both for children and for
Pierre Robin sequence
Congenitally or acquired shortening of the leg;
Work group’ put on another leg '.
For these handicaps exist work groups exist. The members of the
work group discuss developments in all kinds of areas which
concern the handicap, discuss bottle-necks and work toward the
exchange of important information. That is possible by means of
the B0SK magazine, as topic on one of the national information -
and meeting days or in the form of a brochure.
11 Apply? Fill up the slip and send it in a sufficiently stamped
PO Box 3359
3502 GJ Utrecht
THE BOSK does not do everything alone. At a number of
associations it is often possible for BoSK-members to obtain
good additional information. Therefore it is possible to become
a combined member against a lower tariff (only for parents). THE
BOSK is also part of coordinating organisations, such as the
Chronic Patients and the Disabled Persons Council, which among
others let themselves, be heard in political The Hague, but is
also part of the Association of Cooperating Parent Associations
and Patient Organisations.
The national office fulfils a kind of "traffic -square
function". She keeps matters in movement, answers questions of
individual members, collects information, is active for the
departments, accompanies the work groups and supports the
administrative and governing board.
For who is the BoSK intended
THE BOSK is there for:
parents of children with a handicap
young people with a handicap
adults with spina bifida
adults with spasticity
adults with the Stickier syndrome
We also know donors.
Do you want to know more? Please contact us!
In this short familiarisation it is impossible for us to inform
you entirely concerning what the BOSK can do for you. We gladly
inform you about subjects which concern you personally.
Individual problems can always be presented to the employees of
the national office. For vast and current news you can request a
copy of the BOSK magazine or visit our Internet site:
You too can become a member of the BoSK
As a member you can profit of our knowledge and experience.
Also it is possible that you will find your way more rapidly in
the medical mill and at agencies, that you can make more aware
choices and that you become a better speaker with experts.
Moreover the BOSK and the other members can then profit of your
input and experience. Thus we can improve our work together for
a future for all of us.
Do you want to know more? Phone, write or e-mail us at.
3502 GJ Utrecht
Tel. 030 - 245.90.90
Fax: 030 - 231.38.72
Look also on the Internet at: